Support Groups
People with hepatitis C have organised themselves into patient groups that provide local contacts, forums and information about the disease. These groups are a valuable source of real-life experience and represent an outlet for those who need to talk to other people with similar circumstances. Patient groups are also often able to provide details about local practices and regulations. Contact the patient groups in your area for more information.
Worldwide support groups on Facebook:
This is Hepatitis - The ‘This is Hepatitis Facebook page’ is supporting the World Hepatitis Campaign to increase public awareness of the scale of the problem, to address the importance of the disease as compared to other high-profile diseases, and to achieve better prevention practices and access to treatment. Visit: https://www.facebook.com/ThisIsHepatitis
Organizer: ELP - http://www.elpa-info.org/
World Hepatitis Alliance - The World Hepatitis Alliance is a non-governmental organisation that represents hepatitis B and C patient groups from around the world. As a coalition of advocacy groups, the World Hepatitis Alliance is a global voice for the 500 million people worldwide living with chronic viral hepatitis B or C. Visit: https://www.facebook.com/pages/World-Hepatitis-Alliance/167498043275504
Organizer: WHA - http://www.worldhepatitisalliance.org/Home.aspx
Local support groups:
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1. AUSTRIA |
Ms Angelika WIDHALM
|
internet: http://www.gesundeleber.at info@gesundeleber.at |
| 2. BELGIUM Carrefour Hépatites-Aide et Contact(CHAC) Poisson-Moulin, 3 B-6640 Vaux-sur-Sûre Belgium |
Ms Muriel COLINET TEL/FAX : +32 61 26 68 90 |
internet: www.chacasbl.be www.hepatites.be murielcolinet@skynet.be chacasbl@skynet.be |
| 3. BELGIUM Vereniging voor Hepatitis C Patiënten (VHC) F. De Renesselaan, 57 B- 3800 Sint-Truiden Belgium |
Ms Marie-Fabienne VANDEN BERGHE GSM: +32 476 496050 FAX :+32 11 698870 |
internet: www.hepatitisc.be info@hepatitisc.be |
| 4. BOSNIA HERZEGOVINA The Society of chronic hepatitis C patients Banja Luka, M.Obilica 56 Republic of Srpska, BiH |
Mr Zdenko SIMONOVIC TEL/FAX : +387 51 46 55 13 |
internet: uohcv@blic.net |
| 5. BULGARIA Hepasist 26 Skobelev Blvd. 1606 Sofia Bugaria |
Stanimir HASURDJIEV, M. D. |
internet: www.hepasist.com office@hepasist.com |
| 6. CROATIA HULOH/CATIH "Hepatos" Doverska 29 21000 Split Croatia |
Ms Tatjana REIC Office TEL: + 385 21 45 99 88 FAX: + 385 21 45 99 89 GSM: + 385 98 903 24 87 Council TEL: + 385 21 322 888 |
internet: www.hepatos.hr hepatos@hepatos.hr tatjana@hepatos.hr |
| 7. EGYPT Dakalhia Str. L-Seka L - Kadema 92 Nagala Abu-Hussian (Gl and Liver Unit) Almansoura Faculty of Medicine Almansoura 35516 Egypt |
Dr Gamal SHIHA TEL: 002 050233931 GSM: 002 012 31280501 FAX: 002 050 2217900 |
internet: www.liver-ri.org.eg musmh@mans.edu.eg g_shiha@hotmail.com |
|
8. FRANCE Féderation SOS Hépatites |
Mr Ernest ROHRMANN
Ecoute et soutien |
internet:
|
|
9. GERMANY |
Mr Achim KAUTZ TEL 0049-221-28 29980 FAX 0049-221-28-29981 |
internet: www.leberhilfe.org akautz@leberhilfe.org info@leberhilfe.org |
| 10. GERMANY Deutsches Hepatitis C Forum e.V Postfach 13 31 D-49783 Lingen (Ems) Germany |
Ms Nadine PIORKOWSKY TEL +49 (0)2225 18476 FAX +49 (0)2225 70275 |
internet: www.hepatitis-c.de piorkowsky@hepatitis-c.de |
| 11. ITALY Educazione,informazione e Prevenzione sull'Epatite C (EpaC) Piazza Cavour, 3 20122 Milano Italy |
Mr Ivan GARDINI TEL +39 396612460 FAX +39 396917255 |
internet: |
|
12. THE NETHERLANDS |
TEL + 31-33- 4612231 |
internet: |
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13. POLAND |
Poland JAROSLAW Chojnacki (president) GSM: +48 602 172 907 Ilona SIKORSKA (English speaker) GSM: +48 504 223 082 |
internet: www.prometeusze.pl www.wzw.pl j.chojnacki@prometeusze.pl i.sikorska@prometeusze.pl |
| 14. PORTUGAL SOS Hépatites Portugal Praça Mota Veiga Lote O subcave Dta 1800-280 Portugal |
Ms Emilia RODRIGUES TEL: +351 21 85 49 274 |
internet: www.soshepatites.org.pt emiliarodrigues@gmail.com |
| 15. ROMANIA Sano-Hep Str. Zizinului Nr.24 BL.35 Sc.A,AP.26 Romania |
Mr Gheorghe IONESCU TEL: 0040 723 234 514 FAX: 0040 268 311 106 |
internet: www.sanohep.gdd.ro sanohep@gmail.com |
| 16. SLOVAKIA HEP HELP KLUB 83303 Bratislava, Slovak Health University, Limbova 12 Ester Durakova Slovakia |
Prof.Jozef HOLOMAN,MD TEL: 00421-2-59369557 TEL: 00421-2-53416880 |
internet: www.hephelpklub.com/ jozef.holoman@szu.sk |
| 17. SPAIN Association espanola de Enfermos de Hepatits C (AEHC) C/ Musico Peydro 39 Entlo.Desp.5 E- 46001 Valencia Spain |
Ms Amparo GONZALES TEL: 00 34 963509187 00 34 963510200 FAX 00 34 963532671 |
internet: www.aehc.es aehc@aehc.es |
| 18. SPAIN ASSCAT Associació Catalana de Malalts d'Hepatitis "Hotel d'Entitats la Pau" Pere Vergès, 1. pis 8. despatx 8 08020 Barcelona Spain |
María del VALLE LORITE Galera (President) Tel.: 933145209 - 629660667 Fax: 932 780 294 |
internet: www.asscat.org informacio@asscat.org |
| 19. SWEDEN Riksföreningen Hepatit C (RHC) RHC Box 6086 SE-164 06 Kista Sweden |
Ms Maj HELLSTRÖM TEL + 46 0824 88 80 |
internet: www.hepatitc.nu info@hepatitc.nu |
| 20. UNITED KINGDOM British Liver Trust 2 Southampton Road Ringwood, Hampshire BH24 1HY England |
Ms Sarah MATTHEWS TEL +44 (0) 870 770 8028 |
internet: www.britishlivertrust.org.uk info@britishlivertrust.org.uk |
| 21. UNITED KINGDOM The Hepatitis C Trust 27 Crosby Row London, SE1 3YD England |
Mr Charles GORE TEL +44 (0)207 089 6220 FAX +44 (0)207 089 6201 |
internet: www.hepCuk.info info@hepctrust.org.uk charles.gore@hepctrust.org.uk |
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